Mentioned 19× · first seen 06-jul-2026 · last seen 06-sep-2026

Health Data Access, Transparency, and Affordability

Current understanding

To be populated as evidence accumulates.

Evidence log

2025-07-10 — Access to Claims Data Act: Access to Claims Data Act referred to the House Energy and Commerce and Ways and Means committees, adding a House-side vehicle specifically targeting access to health-insurance claims data alongside broader health data access proposals. (novelty: 2)
2026-08-04 — Medicare Program; Hospital Inpatient Prospective Payment Systems for Acute Care Hospitals (IPPS) and the Long-Term Care Hospital Prospective Payment System and Policy Changes and Fiscal Year (FY) 2027 Rates; Requirements for Quality Programs; Other Policy Changes; and Adoption of Updated Versions of Certain Health Information Technology Standards: 2026 — FY 2027 IPPS/LTCH PPS Final Rule adopts updated versions of certain health information technology standards, advancing the interoperability baseline required of participating hospitals. (novelty: 2)
2026-07-21 — Lower Costs, More Transparency Act of 2026: 2026 — Lower Costs, More Transparency Act of 2026 (HR9393) ordered to be reported in the nature of a substitute by a unanimous 45–0 committee vote, advancing a broad health cost and transparency vehicle at committee stage. (novelty: 2)
2026-06-11 — Web of Biological Data Act of 2026: S4770 (Web of Biological Data Act of 2026) introduced and referred to the Senate Energy and Natural Resources Committee, proposing a coordinated federal biological-data framework — adds another bio-data infrastructure vector alongside the AI-Ready Bio-Data Standards Act. (novelty: 3)
2026-03-12 — AI-Ready Bio-Data Standards Act: S4069 (AI-Ready Bio-Data Standards Act) referred to the Senate Commerce, Science, and Transportation Committee, proposing federal standards to make biological data structured and interoperable for AI use — adds a bio-data interoperability vector alongside broader health data access/transparency proposals. (novelty: 3)
2026-07-22 — Timely Electronic Health Record Transfers for Transitioning Servicemembers Act of 2026: 2026 — HR9865 (Timely Electronic Health Record Transfers for Transitioning Servicemembers Act of 2026, introduced): would require timely electronic health record transfers for servicemembers leaving military service, addressing DoD-to-VA/civilian EHR interoperability gaps during transition. (novelty: 2)
2026-07-13 — Health and Location Data Protection Act of 2026: S4946 (Health and Location Data Protection Act of 2026) referred to the Senate Commerce Committee, proposing federal safeguards for health and location data — adds a Senate-side privacy vector alongside House data access/transparency bills. (novelty: 3)
2026-07-23 — Electronic Disclosure by Group Health Plans Under ERISA: DOL proposed rule would create a new ERISA safe harbor allowing group health plan administrators to deliver required disclosures electronically via website notice (with paper-copy and opt-out rights), affecting how participants receive plan transparency information. (novelty: 3)
2026-07-13 — FAIR Data Act: HR9655 (FAIR Data Act) referred to the House Committee on Energy and Commerce, signaling additional legislative interest in health data access/interoperability; substantive text not yet available. (novelty: 3)
2026-06-25 — To amend title XVIII of the Social Security Act to increase data transparency for supplemental benefits under Medicare Advantage.: 2025 — HR5243 (introduced): would require increased data transparency for Medicare Advantage supplemental benefits, adding an MA-specific transparency vector alongside broader health data access proposals. (novelty: 2) (novelty: 2)
2025-03-10 — MATCH IT Act of 2025: 2025 — MATCH IT Act of 2025 (introduced): would direct HHS to define a national patient-matching standard and minimum data set to improve record linkage across health IT systems, aiming for 99.9% match rates. (novelty: 3)
2025-11-18 — Patient Device Data Access Act of 2025: HR6117 (Patient Device Data Access Act of 2025) referred to the House Committee on Energy and Commerce in November 2025, proposing to grant patients access to data generated by their medical devices; no substantive text analyzed yet. (novelty: 2)
2026-03-23 — Health Care Cybersecurity and Resiliency Act of 2026: Health Care Cybersecurity and Resiliency Act of 2026 (introduced) would expand HIPAA/HITECH breach notification to require disclosure of the number of affected individuals — a transparency-adjacent requirement, though the bill’s primary focus is cybersecurity standards rather than data access. (novelty: 3)
2026-07-07 — Medicare Program: Hospital Outpatient Prospective Payment and Ambulatory Surgical Center Payment Systems; and Quality Reporting Programs; Including the Hospital Outpatient Quality Reporting Program and Ambulatory Surgical Center Quality Program; Request for Information on Strengthening the Standardization and Comparability of Hospital Price Transparency (HPT) Data; Prior Authorization; Accrediting Organization (AO) Deeming for Emergency Medical Treatment and Labor Act (EMTALA); and Notices of Closure of Teaching Hospitals and Opportunities To Apply for Available Slots: 2026 — CY 2027 OPPS/ASC Proposed Rule includes a Request for Information on strengthening the standardization and comparability of Hospital Price Transparency (HPT) data. (novelty: 2)
2026-06-25 — Health DATA Act of 2026: HR9486 (Health DATA Act of 2026) referred to the House Committee on Education and Workforce on 2026-06-25, proposing new health data access or transparency requirements; text not yet analyzed. (novelty: 2)