National Plan for Epilepsy Act
Key claim: The National Plan for Epilepsy Act requires HHS to create a national plan and Advisory Council on Epilepsy Research, Care, and Services to coordinate federal prevention, diagnosis, treatment, and cure efforts, with biennial and annual reporting to Congress through 2035.
Abstract
(S494 · 119th Congress) National Plan for Epilepsy Act This bill requires the Department of Health and Human Services (HHS) to establish a national plan, form an advisory council, and take other actions to address epilepsy. The requirements sunset on December 31, 2035. Specifically, the bill requires HHS to carry out a National Plan for Epilepsy to prevent, diagnose, treat, and cure epilepsy. In carrying out the plan, HHS must implement activities such as coordinating research and services across all federal agencies and soliciting public comments. Also, HHS must establish an Advisory Council on Epilepsy Research, Care, and Services. The advisory council must report to HHS and Congress every two years with an evaluation of federally funded efforts. Additionally, HHS must annually report to Congress with recommended actions based on its assessments of the nation’s progress on epilepsy. Latest action (2026-07-22): Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Why this matters
The bill would create a standing federal coordination structure — a national plan plus an HHS advisory council — for epilepsy research, care, and services, rather than changing what patients pay or what insurers cover. If enacted, it would give epilepsy a dedicated interagency planning vehicle similar to those used for Alzheimer’s and other conditions, with recurring reports to Congress through 2035 that could shape future funding and program decisions.