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Dossier Legislative enacted 04-jan-2025
Signed into law (or passed over a veto) — now binding federal law.

Gabriella Miller Kids First Research Act 2.0

Key claim: The Gabriella Miller Kids First Research Act 2.0 reauthorizes through FY2028 an NIH pediatric disease research initiative, requires NIH coordination to avoid duplicative pediatric research, and directs HHS to report to Congress on funded research.

Abstract

(HR3391 · 118th Congress) Gabriella Miller Kids First Research Act 2.0 This act reauthorizes through FY2028 a pediatric disease research initiative within the National Institutes of Health (NIH) and requires the NIH to coordinate pediatric research activities to avoid duplicative efforts. Additionally, the Department of Health and Human Services must report to Congress about research funded through the initiative. Latest action (2025-01-04): Became Public Law No: 118-228.

Why this matters

Reauthorization sustains a dedicated NIH funding stream for pediatric disease research through FY2028, which affects the pipeline of studies available to children with rare and serious conditions. The added coordination and reporting requirements are aimed at reducing duplicative pediatric research across NIH institutes and giving Congress visibility into how funds are used, though the law does not change coverage or what patients pay directly.

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Gabriella Miller Kids First Research Act 2.0
Stage: enacted · congress · 04-jan-2025

The Gabriella Miller Kids First Research Act 2.0 reauthorizes through FY2028 an NIH pediatric disease research initiative, requires NIH coordination to avoid duplicative pediatric research, and directs HHS to report to Congress on funded research.

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External: congress:118-hr-3391:enacted

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